i am the forgotten diva. an authentic, trained mezzo soprano, i am now housebound. i have Ehlers-Danlos Syndrome Type 3 (Hypermobility), a genetic defect of the connective tissues of the body. along with it comes lots of pain- RSD, arthritis, fibromyalgia, and a host of other conditions. i now use a power wheelchair to get around. i used to tour the world, and now i miss just putting on a gown and singing with my friends. i am ever hopeful.
Friday, May 4, 2012
welcome back, my zebras and friends
hi friends. i'm back, after a long break. someone stole my medicine sister blog and has been posting on it as me, i apologize. i will be shutting it down and concentrating on this one. i spent a long winter wrestling with health challenges, and health CARE challenges, and i know i'm not alone in that!
may is EDS awareness month, and i thought it was the best way to jump back in. why the zebra? well, in medical school, doctors are taught "if you hear hoofbeats, look for horses, not zebras". we ARE the zebras. i'll be posting some info this month, but as usual the focus will be on me, me, me ;) and my musical weirdnesses.
Location:
Pembroke, MA, USA
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